Ethical Issues In Genetic Counselling Video
Topic 4. Social, Legal and Ethical Issues Related to Genetic Testing Ethical Issues In Genetic Counselling
Culturally sensitive genetic counseling, with an emphasis on reproductive issues, is an integral and necessary component of comprehensive care for patients and parents affected by all forms of thalassemia disease and trait. Services should be provided by a licensed genetic counselor in states with licensure legislation and by an ABGC board-certified or board-eligible genetic counselor in all other states.
Genetic Testing
Critical components of genetic counseling include: obtaining a three-generation genetic family history pedigree assessing risk for thalassemia in family members identifying risk factors impacting medical management e. A genetic counselor should provide initial and ongoing teaching regarding natural history and clinical manifestations; signs and symptoms of disease that warrant immediate medical attention; and available emotional and social support services.
Genetic counselors should also provide available resources in collaboration with outreach coordinators and social workers e.]
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